The Francis Crick Institute
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The European Cancer Patient's Bill of Rights, update and implementation 2016

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journal contribution
posted on 2021-08-19, 09:24 authored by Mark Lawler, Ian Banks, Kate Law, Tit Albreht, Jean-Pierre Armand, Mariano Barbacid, Michèle Barzach, Jonas Bergh, David Cameron, Pierfranco Conte, Filippo de Braud, Aimery de Gramont, Francesco De Lorenzo, Volker Diehl, Sarper Diler, Sema Erdem, Jan Geissler, Jola Gore-Booth, Geoffrey Henning, Liselotte Højgaard, Denis Horgan, Jacek Jassem, Peter Johnson, Stein Kaasa, Peter Kapitein, Sakari Karjalainen, Joan Kelly, Anita Kienesberger, Carlo La Vecchia, Denis Lacombe, Tomas Lindahl, Bob Löwenberg, Lucio Luzzatto, Rebecca Malby, Ken Mastris, Françoise Meunier, Martin Murphy, Peter Naredi, Paul Nurse, Kathy Oliver, Jonathan Pearce, Jana Pelouchov, Martine Piccart, Bob Pinedo, Gilly Spurrier-Bernard, Richard Sullivan, Josep Tabernero, Cornelis Van de Velde, Bert van Herk, Peter Vedsted, Anita Waldmann, David Weller, Nils Wilking, Roger Wilson, Wendy Yared, Christoph Zielinski, Harald zur Hausen, Thierry Le Chevalier, Patrick Johnston, Peter Selby
In this implementation phase of the European Cancer Patient's Bill of Rights (BoR), we confirm the following three patient-centred principles that underpin this initiative:The right of every European citizen to receive the most accurate information and to be proactively involved in his/her care.The right of every European citizen to optimal and timely access to a diagnosis and to appropriate specialised care, underpinned by research and innovation.The right of every European citizen to receive care in health systems that ensure the best possible cancer prevention, the earliest possible diagnosis of their cancer, improved outcomes, patient rehabilitation, best quality of life and affordable health care. The key aspects of working towards implementing the BoR are:Agree our high-level goal. The vision of 70% long-term survival for patients with cancer in 2035, promoting cancer prevention and cancer control and the associated progress in ensuring good patient experience and quality of life.Establish the major mechanisms to underpin its delivery. (1) The systematic and rigorous sharing of best practice between and across European cancer healthcare systems and (2) the active promotion of Research and Innovation focused on improving outcomes; (3) Improving access to new and established cancer care by sharing best practice in the development, approval, procurement and reimbursement of cancer diagnostic tests and treatments.Work with other organisations to bring into being a Europe based centre that will (1) systematically identify, evaluate and validate and disseminate best practice in cancer management for the different countries and regions and (2) promote Research and Innovation and its translation to maximise its impact to improve outcomes.